Objectives
By the end of this module you will be able to:
- Understand grief while a loved one is living with dementia.
- Recognize ongoing losses during caregiving.
- Find ways to connect with the person as they are now.
- Support caregivers' wellbeing.
Lesson
Many small goodbyes
Dementia can bring a series of losses: shared memories, conversations, roles, and recognition. Each change can bring new grief, even while the person is alive.
Connecting with who is here
Many caregivers find comfort in connecting through the senses and the present moment: music they love, a familiar touch, a favorite food, or looking at photos together. Connection can continue in new forms.
Caregiver strain
Caregivers often carry grief, exhaustion, and guilt at the same time. They may feel relief at moments and then feel ashamed of that relief. All of these feelings are human. Respite, support groups, and help from others matter.
GGN practiceA connection list (about 10 minutes)
List five things that still bring your loved one comfort or joy, or that might, such as a song, a scent, or a texture. Plan to try one this week. If you are supporting a caregiver, ask them for their list. If this brings up pain, pause and reach out to someone you trust, or call or text 988.
Fictional storyFictional Story 3.1: The old song
Hamid's mother no longer speaks much. One afternoon he played a song she used to sing while cooking. She hummed along and squeezed his hand. Hamid cried in the car afterward, from both joy and grief.
Questions to consider:
- What did Hamid discover?
- What might help him care for himself?
Discussion: Hamid found a new way to connect with his mother. He might also benefit from a caregiver support group and from people who will listen to both his joy and his grief.
Reflection Prompts
- What small connections are still possible with someone you love?
- What feelings come up for you as a caregiver?
- Who can give you a break?